July 2026
There is every reason to believe that brighter days are ahead
Newsletter Articles
June 2026
After being given less than a 5% chance at life, I did not want to waste my second chance.
May 2026
For Spring Break 2026, Rafhaela, an Artemis SCID patient, choose to serve on a mission trip to an area of North Carolina still experiencing the after effects of a damaging hurricane.
April 2026
While Alex’s journey involved significant challenges, Austin’s experience with SCID was very different — yet both paths shaped who they are today.
March 2026
Even when plans change abruptly and painfully, compassion and connection can still grow.
February 2026
To save his life, Jake needed a bone marrow transplant. As a 50-50 match to my son, I was able to be his donor.
January 2026
I alone went to sit with the doctors at the morning conference, and I spoke to those who came through during rounds, and also dealt with doctors who weren’t on site via phone, email, and text.
November 2025
I had never even heard of SCID before our diagnosis, and now I’ll talk about it anywhere, anytime, to anyone who will listen.
October 2025
After my initial diagnosis, doctors determined that I had “leaky" JAK3 SCID, a form of the disease where parts of the immune system function, but at very low levels.