April 2026
While Alex’s journey involved significant challenges, Austin’s experience with SCID was very different — yet both paths shaped who they are today.
Newsletter Articles
March 2026
Even when plans change abruptly and painfully, compassion and connection can still grow.
February 2026
To save his life, Jake needed a bone marrow transplant. As a 50-50 match to my son, I was able to be his donor.
November 2025
I had never even heard of SCID before our diagnosis, and now I’ll talk about it anywhere, anytime, to anyone who will listen.
January 2026
I alone went to sit with the doctors at the morning conference, and I spoke to those who came through during rounds, and also dealt with doctors who weren’t on site via phone, email, and text.
