Newsletter Articles


Meet Adelyn and Hunter

November 2025

I had never even heard of SCID before our diagnosis, and now I’ll talk about it anywhere, anytime, to anyone who will listen.


Lia and Nick

October 2025

After my initial diagnosis, doctors determined that I had “leaky" JAK3 SCID, a form of the disease where parts of the immune system function, but at very low levels.