Support from the SCID community means so much to me and my family. 6 weeks ago we had never even heard of SCID
~Sydney, SCID mom
Anyone interested in SCID can stay informed by following our public social channels for updates, announcements, and events. For families living with SCID, we also offer private spaces, including our Facebook group and chatSCID — reserved just for families, where members can connect in confidence and find support from others facing similar challenges.
Click on the social links below.
The SCID Foundation’s Facebook Page is our official hub for announcements, events, webinars, research updates, and other SCID-related news. It’s also a direct way to private message us. Anyone interested in SCID—including patients, families, friends, medical professionals, industry partners, and advocates—is encouraged to follow and like our page.
chatSCID
Come connect face-to-face through a moderated Zoom meetup. It is a wonderful way to ask questions, share your experience, and connect with other families who truly understand your journey.
Newly diagnosed families – Connect with others and ask questions.
“Veteran” families – Share your story and support others.
Newsletter
Sign up to stay up to date on important SCID news delivered right to your email. Meet SCID families who share their journeys to help others traveling the same path. Anyone interested in SCID—including patients, families, friends, medical professionals, industry partners, and advocates—is encouraged to subscribe.
Follow us on Instagram to see what we’re doing and get updates.
X
Follow our X (Twitter) feed.
Facebook Group
The SCID Foundation’s private Facebook group connects families living with Severe Combined Immune Deficiency (SCID) in a safe, supportive, and moderated space. This group is part of the SCID Foundation’s mission to bring families together and foster a sense of community.
Those with a diagnosed family member can share experiences, ask questions, learn from others, and build lasting friendships. This global community provides unmatched peer-to-peer support, helping families feel less alone. Admission requires answering screening questions to ensure a secure and trusted environment.
TikTok
Find us on TikTok.