Support from the SCID community means so much to me and my family. 6 weeks ago we had never even heard of SCID
~Sydney, SCID mom
Find out more about the SCID Foundation and connect with community by following us online.
Click on the social links below.
The SCID Foundation’s Facebook Page is our official hub for announcements, events, webinars, research updates, and other SCID-related news. It’s also a direct way to private message us. Anyone interested in SCID—including patients, families, friends, medical professionals, industry partners, and advocates—is encouraged to follow and like our page.
Follow us on Instagram to see what we’re doing and get updates.
Facebook Group
The SCID Foundation’s private Facebook Group connects families living with Severe Combined Immune Deficiency (SCID) in a safe, supportive, and moderated space—part of the SCID Foundation’s mission to bring families together and provide a sense of community.
Here, those with a diagnosed family member can share experiences, ask questions, learn from others, and build lasting friendships. This global community offers unmatched peer-to-peer support, helping families feel less alone. Admission requires answering screening questions to ensure a secure and trusted environment.
Sign-up to stay up-to-date on important SCID news delivered right to your email.
chatSCID
Come connect face-to-face through a moderated Zoom meetup. It is a wonderful way to ask questions, share your experience, and connect with other families who truly understand your journey.
Newly diagnosed families – Connect with others and ask questions.
“Veteran” families – Share your story and support others.
Follow our X (Twitter) feed.
Find us on TikTok.