Support from the SCID community means so much to me and my family. 6 weeks ago we had never even heard of SCID
~Sydney, SCID mom
Find out more about the SCID Foundation and connect with community by following us online.
Click on the social links below.
The SCID Foundation maintains both a Facebook Page and a Facebook Group. The Facebook Page is our official home on Facebook. It is a great place to watch for announcements and information related to all SCID topics. Learn about events, webinars, new research, and other important updates. From our Facebook Page, you can private message directly with us. Anyone may follow the SCID Foundation’s Facebook Page. All SCID stakeholders and anyone with an interest in SCID: friends, family, medical professionals, industry partners, and advocates are all encouraged to LIKE our page.
Follow us on Instagram to see what we’re doing and get updates.
Facebook Group
When you have a child with a rare disorder, it can be very hard to find a group of people who truly understand what you deal with day to day. Part of the SCID Foundation’s mission is to connect families facing Severe Combined Immune Deficiency (SCID) and provide a sense of community.
The private SCID Foundation Facebook group is a moderated space where those with a diagnosed family member can come to share their experiences, ask questions, learn from each other, and develop friendships. The peer-to-peer support found within this group is unmatched and directly impacts the lives of families, helping them feel less alone on their journey.
Our group serves patients and families from around the world, offering a vital link between people navigating the challenges of SCID.
Those who request admittance to the group will be asked a number of questions prior to approval. Answers to those questions are required for admittance.
chatSCID
Come connect face-to-face through a moderated Zoom meetup. It is a wonderful way to ask questions, share your experience, and connect with other families who truly understand your journey.
Newly diagnosed families – Connect with others and ask questions.
“Veteran” families – Share your story and support others.
Follow our X (Twitter) feed.